When Jamie said “Bobby speaks for me” I totally lost it. Still sitting here crying. Bobby does speak for us. And most of us have waited 20+ years for someone to come along and put the children in front of the all mighty dollar.
Reading this on Good Friday seems and feels quite profound..Jesus died on the cross for the sins of humanity and what has been done to these beautiful souls is a sin 🙏🏻❤️
Your wonderful son and my wonderful nephew have profound autism and they are amazing human beings! My sister has been through hell finding him the right care and support that he needs, Alex is now 28 and lives in a wonderful home close by to my sister's home and lives a full life. At 20 he had Hodgkins Lymphoma and thankfully survived, after the first chemo session he had his first seizure! He is loved for who he is, but my sister would give anything to hear him speak. JFK is right , we must help those with Profound autism differently!
I have been following you for quite some time now. I have very few heroes in my life. You are one of them (Chris Nikic, Carly Fleischman, and Sue Rubin a few others). My mother was high functioning Aspergers, her father high functioning autistic; I’m somewhere on the spectrum. I have spent the better part of the last 55 years working in the fields of ID and DD. My 100% free to use and share and download website is www.literacyforanyone.com. Everything you have shared I have witnessed first hand. Keep doing everything you are doing. You may have a heck of a lot more support in your efforts than you realize. Blessings, Tom Gilbert
I don’t understand why some people are so upset about this. One size doesn’t fit every one . There are different levels of this problem. Bobby is 100% right. We all need to accept there is a problem
"on the spectrum" sort of does mean there are extremes. But "profound autism" is about 26%. Is this a smooth spectrum, or is it more of an either-or? The 26% have been invisible and thus presumed to be rare or conveniently nonexistent. Bobby just made this front and center, and the spectrum has just become more sobering.
I have so many people in my circle *complaining* about Kennedy’s efforts to find the cause of the actual and dramatic rise in autism.
They needn't worry; Kennedy will not force it on them. If they want to continue pretending, he will let them. But at least they will be offered a choice between the truth or the lie.
I’ve even seen some running around with their hair on fire like Chicken Littles warning, “hurry and get your child vaccinated before September because after that, you won’t be able to!” 🤦🏻♀️🤦🏻♀️
Nothing could be further from the truth. RFK Jr doesn’t seek to ban vaccines. He wants to make them safer & less toxic for those who still want them. After all, a 2017 Italian study found every human vaccine they tested (over 30 of them) was contaminated by unsafe levels of metals like lead, tungsten, gold, chromium, and debris linked to cancer & autoimmune disease.
However, Bobby also wants to get to the bottom of what exactly is fueling the autism epidemic. What’s so wrong with that?
Bobby speaks for people all over the world - I'm in the UK. Our son is 21 and exactly as you describe JB. I just prayed for Bobby and the community who are behind him at our Good Friday service in church. Thanks to you all.
JB God bless you for sharing your sons words in reaction to Bobby's words of horror regarding the Autism epidemic. I believe you and your son are heroes for what you have done with this unique cross that our loving God has allowed for both of you.
Good Friday is nearly hear. Somehow this discussion seems appropriate during this time of extreme suffering and then redemption.
It seems to me that the inclusion of Harvard Law graduates with the profound autism described here is a deliberate muddying of the definition waters so as to dilute any signal arising from studies into e.g. correlation with vaccinations. If it comes to pass that vaccines do provoke the profound developmental difficulties of "true" autism, by grouping the high-functioning "spectrum" cases in with them will make the necessary epidemiological statistics much harder to prove.
Muddying the waters also serves to excuse reduction in services for the highest-need people. For instance, my severely autistic daughter got into a special therapy school for high-need/profoundly autistic kids. You have to have good insurance to go there, and they do a prior authorization verification process that takes 3-4 weeks before you can even get evaluated, because once enrolled they charge our insurance ~$13,000/month. Kids on Medicaid or even with sub-optimal insurance can’t access these kinds of programs at all, which is a huge injustice, but putting that aside for now - my insurance company is obviously incentivized to conflate high functioning, graduate-from-Harvard-Law-School ‘autism’ with profound autism, and thereby reduce the coverage for these services. If Elon Musk is also ‘autistic’, if these otherwise-successful-in-life 30-something women self-diagnosing on TikTok are indeed ‘autistic’, if it’s all the same - why should they pay $13,000/month for a special therapy school for my child? Certainly she’ll just figure it out any day now, learn to talk and use the potty independently and go on to found the next SpaceX. No need for the state to fund facilities for high-need autistic people to live when their parents die, surely they can put their special math abilities and Harvard Law degree to good use to support themselves. This is why the gentrification of disability is so threatening; it truly is apples and oranges, and letting the apples speak for everyone has serious material consequences for the oranges.
Bobby speaks for all of us. It’s the behaviorists who drank the Pharma Kool-Aid that are muddying the waters. My son does not have profound Autism and he’s not going to Harvard. He’s somewhere in between but independence will always be his struggle. We have respect for those with profound Autism. We know we share mechanisms for injury even if our injuries look different. Bobby is the champion we put into office for a reason. His integrity has been tested over and over again.
Many non and miminally-speaking with Autism are typing/letterboarding/sharing their comments today. My words I shared yesterday over and over and over are followed here by one blog post so worth reading: The word 'AUTISM' is too broad a term and causes way too much in-fighting amongst all those whom it touches. This literally guarantees that someone will be offended no matter what anyone says. The real focus should be on changing the understanding of why this one word AUTISM simply does not describe all the diagnoses. I know mothers of children who are seizing 50x per day, ramming into walls and self-harming all day who don't sleep at night who have constipation and mothers of children who are struggling socially at their jobs - and all of their kids have... AUTISM. Essentially - the light autism folks are boiling mad at the severe autism folks. The severe autism folks feel underrepresented. Everyone, all day long, in all the groups in which I am a part, is ANGRY. Instead of working together, everyone is offended and angry. This is a waste of energy and time and our children hear, everything we say and they feel our anger and resentment. Everyone, in every country, in all walks of life, everyone wants a better life for their kids. They defend their rights to a better future. We are all the same - yet fighting. 🙁 https://www.mouthtohandlearning.com/the-poet-in-me/my-right-to-a-cure-reflections-on-rjk-jrs-speech?fbclid=IwY2xjawJuSzZleHRuA2FlbQIxMAABHnf22-p5k5fslA6Eouq0lFoEUtr1ZJZBGVo6RnWaeT0Pd4DTmBxIZFacT8sJ_aem_AXejW6mUmpinxiaDbI9Fsg
"The severe autistic folks feel underrepresented"....you're kidding me right? That's been the poster of autism since the beginning. If you weren't presenting autism like Rainman then you weren't autistic. Well that's a lie. I can speak but I can't communicate well. I'm locked inside myself in many ways. I have to mask and perform my way thru life simply bc the diagnostic tools are only looking for severe autism. As if most of the severely autistic people even understand what's totally going on so I'm sorry but it's the parents of these kids who are feeling underrepresented on their child's behalf. When people hear autism they think of them not me and thus I'm not believed but I know what I am and you would too if you lived with me daily.
Amen! Bobby speaks for us, too! Our son has progressed to the keyboard. He only learned spelled communication after 26 YEARS of being trapped in his body as an autistic apraxic person. He went to our county's MRDD school. If you don't know what that stands for it's Mental retardation and developmental disabilities. He suffered, he was surrounded by suffering. It's time to DO something about this epidemic! Thank you, JB, for always speaking up and for using your strength to help others. Thank you, Jamie, for speaking for others who aren't there yet! God bless you!
There does need to be recognition between profound autism and people on the autism spectrum, but also those who get temporary adhd when they are exposed to aluminium. I even know drs who get temporary adhd from the aluminium in vaccines as they have become hypersensitised to aluminium like me, and they became hypersensitive at an older age(like 14 for me) and they usually have a mthfr variant which makes them susceptible to becoming hypersensitive to aluminium. In 2020 I got the sensory symptoms of autism after a back surgery in which an implant and bone cement was implanted in me. Sorting that out was just a matter of removing the implant and removing my composite fillings with alumina in them and replacing with metal free ceramics. I haven’t been able to get the bone cement removed from my back which is why I replaced my composite fillings. The bone cement has alumina in it and putting it in me put me over my limit for alumina/aluminium. I didn’t see the announcement but will have to give it a watch. I do hope he implicated the metals in vaccines as being the main culprit, as well as other sources and thimerasol
The aluminium has to be removed and those who get autism injury are inefficient detoxers and the susceptible are those at risk of becoming hypersensitive to metals when exposed. Those with mthfr variants or similar are the susceptible to becoming hypersensitive to metals. It’s not just aluminium though. It’s also alumina, which is in a lot of modern dental work and thimerasol(mercury)
When Jamie said “Bobby speaks for me” I totally lost it. Still sitting here crying. Bobby does speak for us. And most of us have waited 20+ years for someone to come along and put the children in front of the all mighty dollar.
Same.
Well said.
I'm sitting here crying, too.
Same here
Reading this on Good Friday seems and feels quite profound..Jesus died on the cross for the sins of humanity and what has been done to these beautiful souls is a sin 🙏🏻❤️
Your wonderful son and my wonderful nephew have profound autism and they are amazing human beings! My sister has been through hell finding him the right care and support that he needs, Alex is now 28 and lives in a wonderful home close by to my sister's home and lives a full life. At 20 he had Hodgkins Lymphoma and thankfully survived, after the first chemo session he had his first seizure! He is loved for who he is, but my sister would give anything to hear him speak. JFK is right , we must help those with Profound autism differently!
Dear Sir,
I have been following you for quite some time now. I have very few heroes in my life. You are one of them (Chris Nikic, Carly Fleischman, and Sue Rubin a few others). My mother was high functioning Aspergers, her father high functioning autistic; I’m somewhere on the spectrum. I have spent the better part of the last 55 years working in the fields of ID and DD. My 100% free to use and share and download website is www.literacyforanyone.com. Everything you have shared I have witnessed first hand. Keep doing everything you are doing. You may have a heck of a lot more support in your efforts than you realize. Blessings, Tom Gilbert
I don’t understand why some people are so upset about this. One size doesn’t fit every one . There are different levels of this problem. Bobby is 100% right. We all need to accept there is a problem
"on the spectrum" sort of does mean there are extremes. But "profound autism" is about 26%. Is this a smooth spectrum, or is it more of an either-or? The 26% have been invisible and thus presumed to be rare or conveniently nonexistent. Bobby just made this front and center, and the spectrum has just become more sobering.
Please thank Jamie for sharing his input.
I have so many people in my circle *complaining* about Kennedy’s efforts to find the cause of the actual and dramatic rise in autism.
They needn't worry; Kennedy will not force it on them. If they want to continue pretending, he will let them. But at least they will be offered a choice between the truth or the lie.
I’ve even seen some running around with their hair on fire like Chicken Littles warning, “hurry and get your child vaccinated before September because after that, you won’t be able to!” 🤦🏻♀️🤦🏻♀️
Nothing could be further from the truth. RFK Jr doesn’t seek to ban vaccines. He wants to make them safer & less toxic for those who still want them. After all, a 2017 Italian study found every human vaccine they tested (over 30 of them) was contaminated by unsafe levels of metals like lead, tungsten, gold, chromium, and debris linked to cancer & autoimmune disease.
However, Bobby also wants to get to the bottom of what exactly is fueling the autism epidemic. What’s so wrong with that?
https://thevaccinereaction.org/2017/02/dirty-vaccines-new-study-reveals-prevalence-of-contaminants/
I love this so freaking much. THANK YOU. Never stop fighting.
Bobby speaks for people all over the world - I'm in the UK. Our son is 21 and exactly as you describe JB. I just prayed for Bobby and the community who are behind him at our Good Friday service in church. Thanks to you all.
Too many people are saying it's just a "political ploy." We know it's a promise being kept.
JB God bless you for sharing your sons words in reaction to Bobby's words of horror regarding the Autism epidemic. I believe you and your son are heroes for what you have done with this unique cross that our loving God has allowed for both of you.
Good Friday is nearly hear. Somehow this discussion seems appropriate during this time of extreme suffering and then redemption.
It seems to me that the inclusion of Harvard Law graduates with the profound autism described here is a deliberate muddying of the definition waters so as to dilute any signal arising from studies into e.g. correlation with vaccinations. If it comes to pass that vaccines do provoke the profound developmental difficulties of "true" autism, by grouping the high-functioning "spectrum" cases in with them will make the necessary epidemiological statistics much harder to prove.
Sadly I agree
Muddying the waters also serves to excuse reduction in services for the highest-need people. For instance, my severely autistic daughter got into a special therapy school for high-need/profoundly autistic kids. You have to have good insurance to go there, and they do a prior authorization verification process that takes 3-4 weeks before you can even get evaluated, because once enrolled they charge our insurance ~$13,000/month. Kids on Medicaid or even with sub-optimal insurance can’t access these kinds of programs at all, which is a huge injustice, but putting that aside for now - my insurance company is obviously incentivized to conflate high functioning, graduate-from-Harvard-Law-School ‘autism’ with profound autism, and thereby reduce the coverage for these services. If Elon Musk is also ‘autistic’, if these otherwise-successful-in-life 30-something women self-diagnosing on TikTok are indeed ‘autistic’, if it’s all the same - why should they pay $13,000/month for a special therapy school for my child? Certainly she’ll just figure it out any day now, learn to talk and use the potty independently and go on to found the next SpaceX. No need for the state to fund facilities for high-need autistic people to live when their parents die, surely they can put their special math abilities and Harvard Law degree to good use to support themselves. This is why the gentrification of disability is so threatening; it truly is apples and oranges, and letting the apples speak for everyone has serious material consequences for the oranges.
Bobby speaks for all of us. It’s the behaviorists who drank the Pharma Kool-Aid that are muddying the waters. My son does not have profound Autism and he’s not going to Harvard. He’s somewhere in between but independence will always be his struggle. We have respect for those with profound Autism. We know we share mechanisms for injury even if our injuries look different. Bobby is the champion we put into office for a reason. His integrity has been tested over and over again.
Many non and miminally-speaking with Autism are typing/letterboarding/sharing their comments today. My words I shared yesterday over and over and over are followed here by one blog post so worth reading: The word 'AUTISM' is too broad a term and causes way too much in-fighting amongst all those whom it touches. This literally guarantees that someone will be offended no matter what anyone says. The real focus should be on changing the understanding of why this one word AUTISM simply does not describe all the diagnoses. I know mothers of children who are seizing 50x per day, ramming into walls and self-harming all day who don't sleep at night who have constipation and mothers of children who are struggling socially at their jobs - and all of their kids have... AUTISM. Essentially - the light autism folks are boiling mad at the severe autism folks. The severe autism folks feel underrepresented. Everyone, all day long, in all the groups in which I am a part, is ANGRY. Instead of working together, everyone is offended and angry. This is a waste of energy and time and our children hear, everything we say and they feel our anger and resentment. Everyone, in every country, in all walks of life, everyone wants a better life for their kids. They defend their rights to a better future. We are all the same - yet fighting. 🙁 https://www.mouthtohandlearning.com/the-poet-in-me/my-right-to-a-cure-reflections-on-rjk-jrs-speech?fbclid=IwY2xjawJuSzZleHRuA2FlbQIxMAABHnf22-p5k5fslA6Eouq0lFoEUtr1ZJZBGVo6RnWaeT0Pd4DTmBxIZFacT8sJ_aem_AXejW6mUmpinxiaDbI9Fsg
"The severe autistic folks feel underrepresented"....you're kidding me right? That's been the poster of autism since the beginning. If you weren't presenting autism like Rainman then you weren't autistic. Well that's a lie. I can speak but I can't communicate well. I'm locked inside myself in many ways. I have to mask and perform my way thru life simply bc the diagnostic tools are only looking for severe autism. As if most of the severely autistic people even understand what's totally going on so I'm sorry but it's the parents of these kids who are feeling underrepresented on their child's behalf. When people hear autism they think of them not me and thus I'm not believed but I know what I am and you would too if you lived with me daily.
Amen! Bobby speaks for us, too! Our son has progressed to the keyboard. He only learned spelled communication after 26 YEARS of being trapped in his body as an autistic apraxic person. He went to our county's MRDD school. If you don't know what that stands for it's Mental retardation and developmental disabilities. He suffered, he was surrounded by suffering. It's time to DO something about this epidemic! Thank you, JB, for always speaking up and for using your strength to help others. Thank you, Jamie, for speaking for others who aren't there yet! God bless you!
There does need to be recognition between profound autism and people on the autism spectrum, but also those who get temporary adhd when they are exposed to aluminium. I even know drs who get temporary adhd from the aluminium in vaccines as they have become hypersensitised to aluminium like me, and they became hypersensitive at an older age(like 14 for me) and they usually have a mthfr variant which makes them susceptible to becoming hypersensitive to aluminium. In 2020 I got the sensory symptoms of autism after a back surgery in which an implant and bone cement was implanted in me. Sorting that out was just a matter of removing the implant and removing my composite fillings with alumina in them and replacing with metal free ceramics. I haven’t been able to get the bone cement removed from my back which is why I replaced my composite fillings. The bone cement has alumina in it and putting it in me put me over my limit for alumina/aluminium. I didn’t see the announcement but will have to give it a watch. I do hope he implicated the metals in vaccines as being the main culprit, as well as other sources and thimerasol
Could you use homoeopathic aluminum met 30C to decrease your sensitivity to aluminum ?
It works for me when I react in an allergic way to a substance
Where do you get the homeopathic remedy for aluminum?
The Hahnemann Clinic has aluminum metalicum as well as other aluminum forms prepared homeopathicly. https://www.hahnemannlabs.com/cgi-bin/start.cgi/hahnemannlabs.com/hstore/programs/remedy_list.html
I am unfamiliar with using this remedy to reduce an allergic response to aluminum.
This is the full symptom picture of someone who needs the remedy alumina.
http://homeoint.org/books/boericmm/a/alum.htm
Hope this is useful to you.
Thank you so much.
The aluminium has to be removed and those who get autism injury are inefficient detoxers and the susceptible are those at risk of becoming hypersensitive to metals when exposed. Those with mthfr variants or similar are the susceptible to becoming hypersensitive to metals. It’s not just aluminium though. It’s also alumina, which is in a lot of modern dental work and thimerasol(mercury)
https://healthcarenotmedicine.substack.com/p/the-cause-of-autismadhd-and-the-predictability
Thanks.
Thank you for this comment. I had no idea about the risks of poisoning from surgical implants. More environmental toxins to watch out for!