Katie's son suffered a catastrophic regression after his vaccines, and her well-meaning parents responded by founding Autism Speaks, how did the organization go so wrong?
Katie is another of my parent heroes. Her & Christian's experience, family dynamics and ultimately the politics & outside interests of Autism Speaks speaks volumes to what the parents of iatrogenically injured children who go on to receive an autism diagnosis are up against. Add in this actually autistic, autistic as identify, neurotribes bullshit, parents like us are the pariahs of the pariahs of the autism advocacy community and our children are the most marginalized of the marginalized.
I really support a lot of the work that the NCSA is trying to do for our children who are severely impacted. I started to advocate and get involved as I want to fight for local community based housing & home supports, funding,safety education...I could even touch on access to adequate, appropriate and supportive medical care, but they literally denounced the pathogenesis of my girls autism diagnosis. Board members align with Offit's sham of an organization, Autism Science Foundation that literally works against my children's plight, and preventing severe autism in future generations of children. I personally would love to unite and organize, we have a lot of fighters and together our voices would be hard to silence.
It's rough. I think the pHarma lobby ownership of most legislators, ad $ for media, pharma industry imbedded government agencies provoking censorship and demonization silences most parents. We have TACA for families,I appreciate Documenting Hope, Safeminds, IPAK but I dreadfully miss Generation Rescue & TMR pretty much disbanded. I feel like we are missing a collective parent driven national organization that fights for our children.
It's too bad that so many people parrot the idea that if you want to cure or prevent autism, you must hate autistic people and wish they didn't exist. That's like saying that if you want to cure and prevent cancer, you hate people with cancer. No, you love the people. You hate the suffering that they are experiencing. So, you want services and programs to help make their lives better, but you ALSO (not instead of) want to prevent anyone else from suffering in the same way, and ease the suffering of those with autism as much as possible using treatments based on the root cause of their suffering.
I really appreciated this interview. I didn't know Katie's back story. When she talks about her well meaning parents I can relate so much. Even though my highly professional and medicalized family just rejected me and my son, I have in-laws who love us and are well meaning but not very big readers and intellectually not capable of understanding. But they want to help. Its quite rare to get someone from the outside of this issue with the openness to hear and the intellect to truly understand.
ADHD is not part of the autism spectrum according to those who make the official categories. But the categories are mostly irrelevant. What is more important is that the healthcare industry must do a better job at being honest about the array of neurological dysfunction that is seen and damage that can sometimes occur because of a vaccine(s) being given.
Katie is another of my parent heroes. Her & Christian's experience, family dynamics and ultimately the politics & outside interests of Autism Speaks speaks volumes to what the parents of iatrogenically injured children who go on to receive an autism diagnosis are up against. Add in this actually autistic, autistic as identify, neurotribes bullshit, parents like us are the pariahs of the pariahs of the autism advocacy community and our children are the most marginalized of the marginalized.
I really support a lot of the work that the NCSA is trying to do for our children who are severely impacted. I started to advocate and get involved as I want to fight for local community based housing & home supports, funding,safety education...I could even touch on access to adequate, appropriate and supportive medical care, but they literally denounced the pathogenesis of my girls autism diagnosis. Board members align with Offit's sham of an organization, Autism Science Foundation that literally works against my children's plight, and preventing severe autism in future generations of children. I personally would love to unite and organize, we have a lot of fighters and together our voices would be hard to silence.
It's rough. I think the pHarma lobby ownership of most legislators, ad $ for media, pharma industry imbedded government agencies provoking censorship and demonization silences most parents. We have TACA for families,I appreciate Documenting Hope, Safeminds, IPAK but I dreadfully miss Generation Rescue & TMR pretty much disbanded. I feel like we are missing a collective parent driven national organization that fights for our children.
It's too bad that so many people parrot the idea that if you want to cure or prevent autism, you must hate autistic people and wish they didn't exist. That's like saying that if you want to cure and prevent cancer, you hate people with cancer. No, you love the people. You hate the suffering that they are experiencing. So, you want services and programs to help make their lives better, but you ALSO (not instead of) want to prevent anyone else from suffering in the same way, and ease the suffering of those with autism as much as possible using treatments based on the root cause of their suffering.
I really appreciated this interview. I didn't know Katie's back story. When she talks about her well meaning parents I can relate so much. Even though my highly professional and medicalized family just rejected me and my son, I have in-laws who love us and are well meaning but not very big readers and intellectually not capable of understanding. But they want to help. Its quite rare to get someone from the outside of this issue with the openness to hear and the intellect to truly understand.
Does ADHD come under autism spectrum diseases, My son is diagnosed with adhd, thanks to the childhood vaccination
ADHD is not part of the autism spectrum according to those who make the official categories. But the categories are mostly irrelevant. What is more important is that the healthcare industry must do a better job at being honest about the array of neurological dysfunction that is seen and damage that can sometimes occur because of a vaccine(s) being given.